Make a gift to support Mattie’s project today!
So far, Mattie has raised $21,155 toward her goal of $25,000!
For my Bat Mitzvah project, I would like to raise awareness and money for the genetic disease ML4. I have chosen this idea for my Bat Mitzvah project in honor of my first cousin Shaindy. Shaindy is my sixteen-year-old big cousin. She was diagnosed with ML4 at the age of two. Shaindy is a wonderful person. Although she cannot walk or talk, she will always bring the fun and the laughter into our lives.
This picture of me and Shaindy was taken outside of her school. She brought smiles to the faces of every teacher there. Another thing I love about Shaindy is her love of music, just like me. I think Shaindy can not only hear the music, she can feel it and appreciate it more than any of us can. I daven for Shaindy every day, and I hope that you will all donate to the ML4 Foundation and raise awareness for this genetic disease. The ML4 Foundation is a foundation that is dedicated to finding treatments and a cure for ML4. They work with scientists from all over the world, including Massachusetts General Hospital, Harvard Medical School, and the Tel Aviv Sourasky Medical Center. Please Donate today to help fund a cure for Shaindy and people like her!
Mattie
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ABOUT THE ML4 FOUNDATION
ML4 is a genetic disease caused by the mutation of a single gene that results in the loss of a protein (MCLN1). This incredibly important protein is required by the body for normal functioning: without MCLN1, children and adults with ML4 suffer from progressive and debilitating loss of gross and small motor function, go blind, develop problems chewing and swallowing, rarely have the ability to speak, cannot walk, and over time, lose many abilities that they work hard to acquire when they are young.
The funds raised by the ML4 Foundation are directed to a research program at Massachusetts General Hospital in Boston. We have been working for several years with a team there to create a gene therapy to treat ML4. We are also funding a large-scale natural history study of ML4, bringing ML4 patients from around the world to the MGH clinic to be seen by specialists in this disease. YOUR DONATIONS made this work possible and allow it to continue at a speedy pace!
If you prefer to donate by check, you may mail it to the following address, and note that it is given in honor of Mattie’s Bat Mitzvah.
Mucolipidosis IV Foundation
1440 Spring Street NW
Atlanta, Georgia 30309
The ML4 Foundation is a U.S. 501 (c)(3) nonprofit charitable organization.
Tax ID 13-3633501
